On Progeria

Research into conditions that are or appear to be accelerated aging - Progeria or Werner syndrome - is a field that has garnered great interest in the past few years. Much of this can be credited to the actions of the founders of the Progeria Research Foundation. A recent reprint from the Life Extension Foundation news gives a fair overview:

Dr. Leslie Gordon of Tufts University School of Medicine was ecstatic the day she heard researchers had found the gene mutation that causes progeria - for an instant.

Then she thought: But that's not a cure.

And it's a cure she's after.

Gordon and her pediatrician husband, Scott Berns, who are the founders and force behind the Massachusetts-based Progeria Research Foundation, have an extra motivation for researching the disease. Their son Sampson, 7, was born with it.

The two started the foundation in 1998 to catalyze the search for a treatment.

"There was nothing going on," she said. Although the disease had long been considered a model for studying aging, no one was doing it because it was so rare, and there was no central repository for blood and tissue samples to facilitate research.

In the century since it was first described, fewer than 100 papers had been written on the subject, she said. And the National Institutes of Health, a prime driver of basic medical research, had no money invested in it.

The discovery of the gene in April 2003 changed that.

"I knew it would make hundreds of doors fly open," said Gordon, who helped recruit and fund the scientists who found the gene.

After discovering the genetic roots of progeria, modern bioinformatics made it the work of less than a year to understand how the condition operates - and to show that it is indeed an acceleration of the aging process. Further research into understanding and curing progeria - and related conditions like Werner syndrome - should also result in important insights for future healthy life extension medicine.

Comments

I have been studying degenerative diseases for awhile now and the best things I have heard come from these:
use of raw and living foods and juices
blue-green algae
I have collected many success stories over the years which also point to reversing 'genetic' conditions (for example, an 8 generation hairless cat (genetic) who grew hair when eating the blue-green algae.
Also, sterile cows and bulls, decrepit rats have shown signs of becoming fertile and younger....using wheatgrass and sprouted grains.
Another is MSM., which is biological sulfur...I can get you some website for more information if you want. Thanks, Becky

Posted by: becky person at July 2nd, 2006 7:47 PM

http://www.mannatech.com has incredible stories of regeneration of tissue. One in particular was a women in a coma (to be unplugged by doctor) sister admin. the manose sugar. Brain was 50% destroyed by disease. Three years later the women drives and has 97% of her btain restored.

floyd
( wife of 43 plus years has had Lupus for 50 years)

Posted by: Floyd Coons at July 2nd, 2006 8:17 PM

Come on people - if that's the best you've heard of, you're not looking in the right places nor thinking with your heads screwed on right. You're grasping at straws; listening to myths and wishful thinking; listening to people who care only about parting you from your money; looking for a quick fix where none exists.

Don't believe in magic (or algae, or the favored supplement company of the moment), because the only thing that will do is help you fail and suffer. Educate yourself about real medical science and real, responsible healthcare - such as what supplements are actually capable of in the real world - if you want to make the most of what can be accomplished by the technology of today. Everything else is mere self-delusion.

Posted by: Reason at July 2nd, 2006 9:35 PM

i really do want to cry reading this stuff!

Posted by: roger at February 25th, 2008 7:35 PM

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