Working on Optic Nerve Regeneration

Researchers are working on creating regeneration in mammals where it does not normally happen: "Researchers have long tried to get the optic nerve to regenerate when injured, with some success, but no one has been able to demonstrate recovery of vision. A team [now] reports a three-pronged intervention that not only got optic nerve fibers to grow the full length of the visual pathway (from retina to the visual areas of the brain), but also restored some basic elements of vision in live mice. ... [the mice were able to] regain some depth perception, the ability to detect overall movement of the visual field, and perceive light. ... Previous studies [have] demonstrated that optic nerve fibers can regenerate some distance through the optic nerve, but this is the first study to show that these fibers can be made to grow long enough to go from eye to brain, that they are wrapped in the conducting 'insulation' known as myelin, that they can navigate to the proper visual centers in the brain, and that they make connections (synapses) with other neurons, allowing visual circuits to re-form. ... [Researchers] combined three methods of activating the growth state of neurons in the retina, known as retinal ganglion cells: stimulating a growth-promoting compound called oncomodulin, [elevating] levels of cyclic adenosine monophosphate (cAMP) and deleting the gene that encodes the enzyme PTEN. ... these interventions have a synergistic effect on growth of optic nerve fibers. ... The eye turns out to be a feasible place to do gene therapy. The viruses used to introduce various genes into nerve cells mostly remain in the eye. Retinal ganglion cells are easily targetable."

Update in 07/2016: Since this post seems to have risen in the search engines and attracts a lot of interest from patients, passing readers may want to know that a different approach to stimulating retinal ganglion cell axons to regrow has achieved partial vision restoration in mice. It is an early and very qualified victory, and you should read the details carefully before becoming excited. Nonetheless, there is progress, albeit slow progress.

Link: http://medicalxpress.com/news/2012-05-scientists-regenerate-optic-nerve-components.html

Comments

I totally believe the body is capable of healing itself; that this is what is most "natural." The research process described here fits...makes perfect sense. It sounds perfectly natural that nerve fibers would be capable of "...navigating to the proper visual centers...make connections with other neurons..." At a conference on spinal cord injury, I was once told that nerve fibers, once disconnected, would be difficult to be reconnected by doctors or scientists. I do not understand why it would not be natural that they find each other on their own (and properly re-connect).

Posted by: Irene Queen at September 17th, 2012 1:46 PM

I suffer from AION on both eyes with a vision of only approx 15 - 20% on each eye left. I am most interested do get to know more about such studies and would most probably attend a study.
If you know more and of possible treatments, please get in contact. Thanks ans best regards from Swityerland, Hans-Joerg

Posted by: Hans-Joerg at January 17th, 2013 6:00 AM

I also suffer from optic nerve damage in both eyes. I am down to about 30% vision. I would also happily volunteer in any test panels. Please contact me.

Posted by: Otis Ketron at February 2nd, 2013 7:37 PM

I am blind in both eyes from injury to optic nerve suffered in a plane crash. Am interested in volunteering in any test panels. Would also like any information on any stem cell research or clinical treatment.

Posted by: Mearl Marcum at February 11th, 2013 9:09 AM

Hi I'm blind from tumour in my brain very willing to volunteer life is a dark world want info how to get started stem cell etc please give me details Thank you

Posted by: JESSICA RAVJEE at February 14th, 2013 7:49 AM

Hi, My brother had a head injury that left him blind 2 years ago. The nerves in his left eye were damaged, but his eyeball is intact. He lost his right eyeball, but the nerves on that side were not damages. We are interested in volunteering for trials and getting information on treatment options. Thanks!

Posted by: Ann Cano at February 18th, 2013 9:41 AM

Hi, I am interested in research on Optic Nerve Regeneration.

Posted by: Sonny J at March 28th, 2013 8:58 PM

Four years ago my wife suffered a heart attack and underwent by-pass surgery, afterwards she lost her vision in both eyes. We were told her optic nerved are dead due to a loss of blood pressure during surgery. We are interested in information on stem cell research, testing and/or clinical treatments that may be out there.

Posted by: Jim Heikkila at March 29th, 2013 9:35 AM

My uncle total lost vision in both eyes 10 days ago. It happened over the last several months as a result of lack of oxygen to the optic nerves. He was told it's a side effect of whole brain radiation performed over a year ago. He is otherwise in great health and beating the cancer for 3 years. He is interested in any clinical trials or information regarding optic nerve regeneration via stem cells or otherwise. Any information is greatly appreciated.

Posted by: Misel Vidas at April 2nd, 2013 4:15 PM

My 25 year old son is recovering from TBI that happened 6 months ago today. one of his biggest issues is that because of prolonged ICP pressures both of his optic nerves received damage. also because of a siesure he experienced a brain herniation which has damaged his occipital lobe as well. he is currently blind. my hope is that through contact in the world he has now entered that when the time is at hand when answers are found that he and the rest of those suffering will be able to have the miracle of sight restored once again.

Posted by: George W Sage at April 5th, 2013 6:56 AM

My 15 year old son sustained a TBI 1.5 years ago. Both optic nerves are damaged and he is now blind. We are searching for answers to help him and others like him enjoy the miracle of sight. Any information is appreciated. Thank you!

Posted by: Paula Hass at May 21st, 2013 8:14 PM

My nephew suffered a stroke in December, 2012, which left him with severe vision impairment. Any trial that could restore some of his vision would be a godsend.

Posted by: Donna Marsland at June 21st, 2013 10:12 AM

Hello, i have optic nerve atrophy, i lost vision to 30%, want to know, how can i get my vision back, is possible to treatment optic nerve?
Rally thanks for answer.

Best regards.
Dusan

Posted by: Dusan at June 26th, 2013 6:35 AM

lost eyesight in right eye 25 years ago due to optic nerve damage would be interested to find out about stem cell treatment

Posted by: stevie fox at June 30th, 2013 5:17 AM

Does anybody know about stem cells working on optic nerve hypoplasia? My daughter has it but I heard this works.

Posted by: johanna at July 5th, 2013 10:00 PM

I lost my eye sight in both eyes after caterac surgery. I have been blind for almost 10 years. I am interested in any procedure that could help regenerate my optic nerve. Stem Cell or some type of transplant would be great as long as I can see again. please respond to this message, I know there is alot of advancements and research done for the wounded solders, perhaps I could be included in one of these programs. Thank you. Elvira

Posted by: Elvira Rodriguez at July 23rd, 2013 9:01 PM

Hi,
My brother has MS and he has lost left eye vision 5 months ago because of optic neuropathy. He would like to volunteer any clinical trial on optic nerve regeneration.

Posted by: Adan at July 28th, 2013 8:34 AM

Wow... As one who was born with optic nerve hypoplasia (the nerve just didn't develop fully) and nystagmus, I would LOVE for this research to go further. And like so many people before me have said, please, sign me up! I have about 20/400 vision all together (approx 20/250 in one, and 20/400 in the other), and as an artist.. a performer.. yeah.. this could do -tons- of good. Thanks so much for the hope, guys. And for all the work w/the research. ♥♥

Posted by: Ylluria at August 29th, 2013 8:00 PM

My husbands Optic nerves are damaged through radition from a Brain Tumor. Has got very poor vision on both eyes. Please send me e-mails on the latest research. We live in Cape Town South Africa

Posted by: Ute at September 10th, 2013 1:21 AM

My daughter's optic nerve was damaged (traumatized) during a surgery for removing brain tumor. Interested in knowing the progress in optic nerve repair/regeneration technology and clinical trails in the related areas.

Posted by: Janakiram at September 22nd, 2013 11:23 AM

My husband meet with an road accident 1nd1/2yr back.He lost his right eye vision due to optic nerve damage.He ws operated within 48hrs of his injury and decompression of optic nerve ws done endoscopically..after surgery al medicines were prescribed which includes steroids suppliments..He took brain vitamin (neurobian fort) for about 1yr.Nw he is nt under any medication nd his brain had adapted a lot his blurred nd dual vision.At this stage he cn easiy do his routine work bt being his wife i m always scared.I just want to knw shall i continue him with any other brain vitamin medicines.plz suggest.My husband's age is 34yrs nd body physic is normal.plz help.

Posted by: Dr.Rajshree Chakraborty at September 26th, 2013 1:25 AM

I lost vision through my left eye completely in Oct-2005 pakistan earthquake. However, here in pakistan most doctors believe (after examining my eye) that I had no vision through my left eye from my childhood which is not at all the case!!! I was 6/6 from both my eyes and was hit by something and my eye had swell a lot with no movement of eyeball. however i regained movement of my eyeball after sometime but now have a little squint but total BLACK vision from that eye. I would be interested to have followup for such studies. what place should I keep looking for, for such researches?

Posted by: Awais at September 26th, 2013 2:00 PM

Hi I have optic neuritis I haven't been able to see the same ever since I have been linking all over the place for an answear. Or a
Place we're i could go get some sort of treatment I si oils like to be a volunteer if posible please contact me I hknestly who's to se better again.

Posted by: Jesus at September 28th, 2013 1:12 AM

i just lost my eyesight due to a car accident,i am desperate to find a cure for optic nerve damage please....email me...

Posted by: sharon t at October 3rd, 2013 3:45 AM

My optic nerve was severed during a surgery to remove a brain tumour. This research sounds promising but could it help me?

Posted by: Jen at October 5th, 2013 5:31 AM

33yo pilot now unemployed due to optic neuritis and the optic nerve damage that followed.
Ready to do a lot of things to fight for my vision, money not a issue.

Posted by: Sst at October 6th, 2013 9:53 AM

Lost about 75% of my sight in right eye after vitreous hemmorhage surgery. Presuure build up damaged the optic nerve. Can still see color, but have very, very little clarity. It is as if a piece of crumpled dark gray wax paper is in front of my line of sight. I would LOVE to be included in a stem cell clinical trial to see if the optic nerve could be brought back to the point that I could see again. I SO miss being able to see. Please contact me if I can be added to a clinical trial list.

Posted by: Harry at October 16th, 2013 10:11 AM

Hi, my husband lost his vision from his left eye during a head injury. Doctors said that his optic nerve is damaged but not disconnected. Please tell me if there is any cure or give me advised. Thank you

Posted by: marina at October 22nd, 2013 3:05 PM

Hello. My father had got bacterial spinal meningitis back in 2001 and had ran a temperature of 106 and went into a coma for 2 weeks. When he came to he was completely blind. After he got out of ICU and out of the hospital we took him to an Eye Institute in Oklahoma City, and the doctor said that his optic nerve was grey and it was supposed to be pink. We are very interested in any surgery, or procedure that may help to restore his sight. Please help us!!

Posted by: Kristina Law at October 24th, 2013 9:58 AM

I HAVE ARTIE KNOW RIGHT DIAGNOSED BY MANY OPHTHALMOLOGIST WITH NO MEDICAL REASON FOR THIS PROBLEM OTHER THAN THEY ARE NOW SAYING IT IS COXSWAIN RELATED. I HAVE EXTREMELY LOW VISION INTO A VISION SPECIALIST GAVE ME SOME GLASSES TO TRY AND BRING MY EYES DOWN TO A 2400 AND IT ACTUALLY DID NOT WORK. I HAVE ALSO TALK TO HIS DOCTOR ABOUT FETAL STEM CELLS AND HE THINKS IT WILL WORK TO HELP TO REGENERATE MY OPTIC NERVE BUT NO GUARANTEES. IF THERE IS ANYTHING YOU CAN ADVISE ME OF RA STUDY OR ANYTHING AT ALL PLEASE LET ME KNOW THANKS

Posted by: MELVIN LAMBERT at October 24th, 2013 5:12 PM

hi my son lost his vesion one year back due to injury in his eye.. now doctors say that his optic nerve is demage. and eye is also setting down . is there any change to repair it

Posted by: waseem.feroozai at November 6th, 2013 12:01 PM

My son age 35 years has lost sight from both of his eyes. At early age he was operated at Shankar netaralaya chennai and surgery was carried out. For some time it worked well but later again he landed into problems. 2nd time surgery was carried out at LV at Hyderabad but was not successful. Now he has no vision and he is totally dependent. The other complication are that he is not developed mentally fully. The point I carry all these years is whether he can be given eye sight. As per the report the nerve cells got calcification and are not in good health. If some body from eye surgeon fraternity can tell me whether in such cases any type of treatments are available in India.
Thanks

Posted by: Subhash at November 11th, 2013 5:41 AM

My dad has a detached retina with a dead nerve in his right eye and he recently had a stroke which made him lose vision in his left eye. He is blind in both eyes. We are willing to try anything. Please let me know if there is anything we can do.

Posted by: Rosa at November 16th, 2013 6:18 PM

I had a benign pituitary tumor removed at age 6. It compressed the optic nerve which has left me blind in my left eye. I would sincerely ask you consider me for this study.

Posted by: Mike at November 21st, 2013 7:20 PM

Helli . My sister had chemical burn on her left eye 6 yrs ago. She underwent 3 limbal tsem cell transplant but failef now she has light perception.pls contact me.Thank you.

Posted by: cindy at December 13th, 2013 10:32 AM

I lost the sight in my right eye due to a sinus infection that damaged my optic never in Feb of 2012.

Are clinical trials going to happen anytime soon?

Posted by: Jeff Emery at December 22nd, 2013 11:02 PM

My 7yr son suffered optic nerve damage. I would do anything to help him. Please advise if clinical trials-studies are going on.

Posted by: Anthony Bloemer at December 31st, 2013 2:50 PM

Hi my brother in law suffered from optic nerve damage. I need help from anyone who can help. All I need is information of any doctor who can help thanks

Posted by: kevin at January 3rd, 2014 2:41 AM

My son has optic nerve damage he was diagnosed with Lhon with a blood test is there any help he ca receive please help him

Posted by: SandyWillis at January 7th, 2014 12:38 PM

My son had a car accident two years ago in which he lost his right eye - still intact but dead. His left eye has good pressure but no one can tell us why he cannot see out of this eye - this accident has left him 100% blind - no light perception at all. Not a day goes by that i am not looking someone for research being done. Please HELP me find something that would help. He cannot have an MRI as he lost most of his face and was replaced with ribs and steel.

Posted by: ANDREW ZYLSTRA at January 14th, 2014 7:52 AM

Please send me more information. I would really like to be included in any study that may be in the works. Thank You JP

Posted by: James Panos at January 22nd, 2014 4:56 PM

Optic nerve damage due to benign tumor was totally blind, after stem cell
treatments in China, I got light vision and some color and form vision back.
It was a relief to know that it can happen. I know of others who got back their vision from various issues. Please put me on your clinical trials list.

Thank you, Cary

Posted by: cary hagan at January 22nd, 2014 5:03 PM

My daughter is 16 years old and she has glaucoma. She is blind on her right eye but she still can see shadows and 70% of vision still on her left eye.I am looking for stem cell as a option to help her. Let us know to be part of you research please.Thanks

Posted by: Leo Martell at January 24th, 2014 12:47 AM

I lost 50% of my vision from optic neuritis due to MS when i was 14 years old. I am now almost 23 and my one and only dream is to see the world clearly again. I would love to drive and be independent and would love to take my 2 beautiful girls to the park and let them run around more than 10 ft away from me and still be able to keep an eye on them. I hope this treatment really starts soon to help out all who are visually impaired. This is a BEAUTIFUL world! It would be an honor for those like me to be able to actually see it. Thanks for your hard work!

Posted by: Sana Dirbas at January 27th, 2014 7:33 PM

My niece of 3 years old has had an operation with a not good outcome.
Her optic nerve was damaged and she is not be able to see.
This operation was done on Wednesday 22nd of January 2014, so it is very recent. I mentione it because the fact that it is so recent maybe is a positive aspect if somenthing can be done for her.
Please, could you be so kind to send us some advice, information...?
It will be very, very much appreciated.
Thank you so much.

Posted by: Beatriz Caulonga at January 28th, 2014 12:44 PM

Hi,
I had a car accident and lost a lot of vision in my one eye. Now slowly it is recovering but still a long way to go. Doctors say my optic nerve is damaged due to internal bleeding done by accident. I was in comma for two weeks and had 2 brain surgeries. Is there any way this can be treated???
Please let me know

Posted by: Hafiz Muhammad Ammar at February 2nd, 2014 10:58 AM

I too suffer from NANION and have roughly 40% vision remaining in one eye. I too would willingly participate in any panels or trials.

Posted by: Ronald Kolodziej at February 3rd, 2014 3:20 PM

I have AION lost about 75% of the vision in the left eye. I would be willing to participate in any trial or anything related to this issue. As you all know and understand it is extremely frustrating as what ever vision is left is screwing up the good vision in the good eye. I have thought about seeing what can be done by killing the nerve completely.

Posted by: Ted Shlachter at February 8th, 2014 1:42 AM

My Wife lost sight after Breast cancer. Nurses were told to watch blood pressure and didn't .They were told to let DR. know if it went below 60 but let it go to 30 for 15 hours killing the Optic Nurve.If any test are avalible please let Me know. God Bless.

Posted by: Donald Diltz at February 14th, 2014 9:23 AM

My sons friend was injured in a hunting accident he was shot by a shot gun they removed on eye completely he now has a glass eye the other eye ball was damaged at the optical nerve and has developed a film over it the doctor said the film is very thick and more than Likely he will never see again what are the chances that this that this can be fixed . He's only 15 years old

Posted by: Julie newsom at February 20th, 2014 6:18 AM

My father suffer optic nerve atrophy at 7.8.2009. due to a boil appeared on his nose and he is suffering blindness please help me of his cure do you have any cure optic nerve.

Posted by: agha muhammad ali at March 3rd, 2014 5:39 AM

My wife is legally blind in both eyes and her optic nerve is degenerating at a rapid pace. She was damaged during an operation of a brain tumor in the super sella region. Underwent 16 weeks of the gamma knife after an unsuccessful and invasive Craniotomy. She now suffers with cluster headaches and extreme sight degeneration from the nerve damage. We would like any information you can provide on the opening of trials for regeneration of the optic nerve. Thank you for all that you do, Steve Ragan

Posted by: Steve Ragan at March 4th, 2014 10:42 AM

i was diagnosed with naion an optic nerve stroke, in sept 2013, @ am desperate to try anything that will restore my eye sight thank you

Posted by: megan williams at March 6th, 2014 3:39 PM

I am curious to if anymore studies have taken place since this article was published. I was blinded in my left eye due to optic nerve damage from blunt force trauma. Thank you in advance.

Posted by: Ron at March 8th, 2014 2:57 PM

I have thinning of optic nerve and must use eye drops to keep it from
thinning further. I take Alphagan P drops every 12 hours to keep eye
pressures down. I hope that information might help someone else.
God Bless all of you for trying to curb loss of vision.

please do not make my e-mail address public !!!

Posted by: ginny at March 10th, 2014 1:03 AM

My Wife lost optic nerves do to low blood pressure after Brest surgery from cancer. Has there been any New Optic Nerve Studyes with succes on Regeneration of the Nerve Yet with Stem Cell? We would be enterested to Be Part of New Study. Thank You.

Posted by: Donald Diltz at March 13th, 2014 8:41 PM

i also suffering from optic neurities problem since from 6 years.my right eye is totally blind. i can see with left eye.with 60% of vision is available. plz.. help me

Posted by: pooja kakoju at March 16th, 2014 10:21 AM

I am glaucoma patient. I lost my left eye vision about 90%. I m very interesting in this research. I m from india. Pls call me for any help that I can do for this. Thanks
Waiting for your earlier response.
-Sachin

Posted by: Sachin M. Thakur at March 17th, 2014 6:05 AM

Hi Cary,

Could you provide any information about the stem cell treatment in China? This is something I would be very interested in!

Posted by: Paul at April 11th, 2014 11:20 AM

Dear Research team leader; It is a great hope for those who lost part of their vision due to damage in optic nerve. I'm the one who lost 70 % of my vision due to glaucoma. In any circumstance and any condition I'm willing to serve as volunteer for the test of the treatment in question. Thank you

Posted by: Abreham Abate at April 14th, 2014 1:35 AM

Today we found out my 5 month old baby girl has0% sight due to optic nerve hypoplasia ! Her optic nerves are rather small from they eye and show no contention to her brain , we are more then happy to be involved in trials !

Posted by: Dani at April 15th, 2014 2:39 AM

I am very interested in undergoing any trials for regeneration of the optic nerve as I suffer from PION after coming out of heart transplant surgery.

Posted by: Bob Christ at April 17th, 2014 12:37 PM

Hi im kamal from ireland . Basically im from india .Last year i have came on ireland
I have completely lost my vision on the right eye. Because doctor told to me that problem start with weather. So is there any treatment for optic nerve
...plz reply

Posted by: Kamaljeet singh at April 22nd, 2014 12:45 PM

Hi..I am a 27 year old father of only 2 years. I have recently lost about 50 percent of my vision due to optic neritis. All I want is to be able to see my son grow into a successful yOung man and be able to support my family like i was. If there is any research trails going on i would gladly volunteer m please let me know. Thank you.

Posted by: Aston Pennington at April 29th, 2014 3:11 AM

Greetings, I have been blind since the age of 8 due to a brain tumor. Due to the surgery my optic nerves were damaged. If there is any information or a little bit of hope out there about repairing regrowth or what ever its called Could you please get in touch. I would be willing to do any thing to have any of my sight back. Thank you.

Posted by: Grant at May 2nd, 2014 11:53 AM

Hy im a 22 years old woman which suffers from optical neuritis due to MS. I have severe visual.impairment,please,i ll.try any new theraphy to regain my sight,even a litle!

Posted by: virginia iaru at May 5th, 2014 6:05 AM

Hi, I lost 85 percent of vision in my left eye due to damage to the optic nerve. I feel hopeless as this impairment limits me to enjoying a full life with my two young children. I want to see them grow into what I hoped and prayed they would be. Any breakthroughs in optic nerve restoration please feel free to contact me I am willing to try almost anything.

Posted by: sharon george at May 5th, 2014 7:58 AM

Hi, I am 39 years old, was diagnosed with optic neuropathy and lost a significant amount of vision in my left eye due to damage to the optic nerve. I feel hopeless as this impairment limits me to enjoying a full life with my two young children. I want to see them grow into what I hoped and prayed they would be. Any breakthroughs in optic nerve restoration please feel free to contact me I am willing to try almost anything.

Posted by: sharon george at May 5th, 2014 8:00 AM

I have a friend who is 63 and contracted MS early in life. As a result she
only has 20% vision. I have been reading about stem cell technology.
She has just told me that she would be prepared to take part in the first trials on humans, when it happens. Is there a register where named can be entrred?
R.J.M.Phillips,(Portsmouth,UK.)

Posted by: Robert Phillips at May 5th, 2014 4:03 PM

i am a prime candidate for a trial of regeneration.I have lost vision in left eye due to glacoma.Since i have good vision in right eye that would make me a good/great candidate for this process please use me......

Posted by: william m reed at May 16th, 2014 2:03 PM

My dad has lost his vision due to glaucoma. Please let us know if there are any studies he could participate in for his optic nerve damage.

Posted by: Neomi at June 23rd, 2014 7:40 AM

Dear research team my 34 years old wife is suffering from TB Managites past 2 years due to the high
brain pressure suddenly she loss vision both eyes optical nerve damage or block if any information to recover optical nerve can repair is appreciated please help is any cure to repair please help.
Thanks

Posted by: Mushtaque at June 24th, 2014 9:46 PM

Dear research team my 34 years old wife is suffering from TB Managites past 2 years due to the high
brain pressure suddenly she loss vision both eyes optical nerve damage or block if any information to recover optical nerve can repair is appreciated please help is any cure to repair please help.
Thanks

Posted by: Mushtaque at June 24th, 2014 9:50 PM

Hi my daughter is totally blind her wires did not connect when she was born she is now 9 hoping stem cell would make a difference

Posted by: Susan Britain at July 3rd, 2014 3:50 PM

My daughter is totally blind and would hopefully benefit from stem cell regeneration because hers didn't want to work from birth optic nerve to brain so term cell would be fab

Posted by: Susan Britain at July 3rd, 2014 3:52 PM

i had a car accident that caused trauma made my optic nerve was damaged and i lost vision in my left eye am 25 years old , i would like to informed of the studies please contact me

Posted by: n at July 15th, 2014 2:45 PM

My optic nerves were damaged by a brain tumour. I have left hononymous hemionopia. I would like to take part in any trials to improve my field of vision.

Posted by: sarah mott at August 10th, 2014 4:24 PM

NAAION left optic nerve inflamed one week. When will vision return? What can make it return faster?

Posted by: c tin at August 23rd, 2014 9:52 AM

Niece has ILON going blind at 22. Any known cures?

Posted by: c tin at August 25th, 2014 8:27 PM

I have recently (2 months back) lost about 90% vision in my left eye due to glaucoma caused nerve atrophy. My left eye vision is 6/60 and right eye 6/60 although there is some evidence of atrophy in right eyes too. Doctors say this can be controlled at this level. I am 44 years old, otherwise healthy. Please let me know if I can participate. Can travel anywhere.

Posted by: Anupam at September 7th, 2014 3:06 AM

Hello,

I have an incident with bomb explode when i was 8yo and this damaged my right eye to the vision left 9%. After 8 years and 4 surgeris i lost my vision due to glaucoma and my optical nerve died which left to the total blindness of the right eye.now its 12 years and i really dont know what to do.Should i wait for the technology which would restore my vision and repair my optical nerve because my eye really hurt like i would have something in it almost all the time or should i replace my eye with an prothesis?

Posted by: Blaz at September 17th, 2014 7:21 AM

Hi my sister age 17 years list vision due to thrombosis please help me if any research is there

Posted by: snehal puri at September 17th, 2014 7:47 AM

Hi,a friend of mine whom I love so much had been robbed two months ago. They took her phone,took her two eye balls out,stroked her and left her for dead. Luckly she's still alive but she has lost her sight due to Optic Nerves being damaged and no longer working. Can someone please tell me if is it still possible that my friend can be able to see again or where should we go to for help.Thank you.

Posted by: Wandiswa Madikane at September 20th, 2014 7:25 AM

My husband lost his eye sight 3 years ago started in right eye went to left eye in 3 weeks he was blind they say its optic nerightist hope theres something out there that can make him see again oneday.Please keep us posted

Posted by: lisa shuford at September 21st, 2014 8:25 AM

Hello my friend was shot 5 times on May 2, 2014.He was put in a self induced coma for two weeks.When he woke up from out of being in a coma his vision in both of his eyes faded away in 72, please contact me if anything can be done to restore his eye sight.

Posted by: Felicia Howard at October 3rd, 2014 4:08 PM

Hi, I almost lost vision in my left eye (below 10/100) due to untreated glaucoma. I did not pay attention to very increased IOP (eye pressure) in my left eye until my vision has started to be blurred. Then doctors diagnosed glaucoma and I refused to undertake a classic surgery (laser surgery is inappropriate for my type of open-angle glaucoma). Paradoxically, I have managed to decrease IOP down to normal values (around 20) in my damaged eye by combination of eye drops and home-made eye drops based on natural ingredients (plants and hot/cayenne pepper). However, my vision cannot be restored unless my optic nerve damage is eventually repaired. Therefore, I am also very interested to participate in the trials. Thanks

Posted by: Branko Stankovic at October 19th, 2014 3:19 AM

I am blinded in my left eye due to an injury to my face. I would be interested in any study relating to optic nerve regeneration.
Best regards

Posted by: Bediesh Merhai at November 6th, 2014 8:11 PM

I lost my vision due to CSF and i was operated with optic nerve fenestration please advice if any thing can be done.

Posted by: helen pereira at November 7th, 2014 8:35 AM

My eldest brother is diagnosed with optic nerve damage.Is there any possibillity to cure it by means of stem cell treatment or regeneration of nerve optic.Or any other treatment to be done.
Please let me know about it as soon as possible.(email me on my email address )
Thank you.

Posted by: angel sharma at November 10th, 2014 5:43 AM

hello, i am father of one year old son who has slightly thin optic nerve, plz tell what should i do. i don,t know it happens from birth or after that... plz help me

Posted by: amit at November 12th, 2014 12:30 AM

i have 6/60 vision in both eyes from birth .
can any comeal transplant or stem cell help me to improve my vision .
i want to improve my vision at any cost plz help me .

Posted by: mustakim bhayla at November 21st, 2014 4:03 AM

I'm suffering from NMO i am only 19 years old and it has relapsed already top many times that i lost too much of my eyesight not only my eyesight but also my hopes and future i really would do anything if i can cure this please contact me

Posted by: Naeun Kang at November 24th, 2014 9:28 PM

My brother met with an accident on 3rd Nov, 2014 and after accident he has lost right eye vision. He is 28 years of old. As per doctors he is suffering Traumatic Optic Neuropathy (TON).

I have visited with my brother in several eye and neuro specialist they
all said that “There is no any light observation in Right eye and also
there is no any kind of damage in eye there is some internal damage in
brain to eye connecting system”. Also doctor said that, Patient not able to
see any more from his right eye and there is so any kind of Surgery,
Treatment and Therapy available to make eye good. Even same statement given
by the doctor Dr. Ravish( AIIMS Delhi India). please help me is there any kind of Surgery,Treatment and Therapy available to make his eye good. please please.....

Posted by: LOVEKESH at December 4th, 2014 4:57 AM

My father lost vision 2 years before because of Glaucoma. Is there any hope to restore lost vision, if yes please inform us.

Thanks,

Posted by: Akhilesh at December 6th, 2014 1:36 AM

I have thin optic nerve on both eyes and am blind. Interest in this and results of this study. Where is this study taken place? What City, State, Hospital? Thanks

Posted by: Barbara at December 17th, 2014 11:29 AM

My daughter is 23 and lost her vision may 2014 due to paralayzed lung which caused her brain to swell which pushed on her optic nerve causing vision loss. She is otherwise healthy no sickness she had perfect vision prii to may. She would like more info. Regarding this plus she would volunteer to any research. Email me.please.

Posted by: Ann Margaret at December 29th, 2014 11:41 PM

i lost most part of my sight in 2001.I diagnosed with optic neuritis and given 1500 mg/day intravenously for 3 consecutive days. Somehow I regained part of my vision. I am very interested to volunteer and be part of any research/test program on optic nerve stem cell regeneration.

Posted by: Almor de Sousa at January 7th, 2015 6:36 AM

Hi I have a daughter who's 10mnths,she had hydrosephulus so now she's partially blind her optic nerve is damaged. If research is done pls email me. I'm in South africa Johannesburg

Posted by: dineo at January 16th, 2015 9:13 AM

Dears,
MY brother have an car accident since one year ago, and he lost his left eye, while for right eye it is still exist but his optic nerve is partially damaged and also retina as well is very thin, we want to help him and make him regain his sight much better in the right eyes, thanks to tell us any doctor have experience or any hospital who can make such advanced diagnoses to know why his vision is slightly decreasing day by day.

Posted by: Ahmed ALi at January 16th, 2015 11:10 AM

Any remedies to repair cure reverse or improve optic nerve damage has anyone found anything that works to improve cure repair optic nerve damage

Posted by: Gregory holland at January 25th, 2015 3:52 AM

Hi.My beautiful 7 year old son damaged his optic nerve in an accident when he was 2.He has been blind in his left eye since then.Ofcourse I would like him to be cured ASAP, but my ex husband refuses to use him in any studies.I have 20/20 vision with no "problems" & pretty hazel eyes.If you need a healthy, live, donor eye, I'd gladly give you one of mine if you could restore my sons vision.Any new info would help.Thank you.

Posted by: Maria Efthimiades at January 25th, 2015 10:04 AM

My beautiful brave 9yr old daughter has an extremely rare bone disease in her skull, she has only just lost the sight in her right eye due to this. We were offered emergency de-compression surgery to take strain off the optic nerve but were informed it would not help her vision and the operation itself was alot for a 9yr old for the outcome to be the same in the end! Opthalmologist states she has healthy optic nerve and eye but just the slight compression to her nerve as caused her blindness. She has the bone disease around her left eye but not sure when she will loose the vision and trying out a drug to delay the abnormal bone growth compressing, the inevitable will happen in her left eye just don't know when as disease is so erratic. Please please please help with optic nerve regeneration, i can't speak for my daughter but i know she would want to try anything to at least keep one eye with vision....A child should never have to loose their eye sight, it must be the most scariest thing in the world, i know i am terrified for her and struggling to accept this.

Posted by: Gillian Findlay at January 30th, 2015 9:37 AM

Please give me any further information concerning regeneration of the optic nerve. My son is 21 and when he was 14 he had a tbi and has no sight in either eye. Looking for anything to help restore his sight

Posted by: Carol Crawford at February 4th, 2015 2:50 PM

My wife (67 years) underwent multiple surgeries e.g Radial Keratotomy resulting in Retinal detachment in both eyes which was successfully corrected by surgery. Subsequently underwent eye muscle surgery to fix double vision, followed by cataract surgery. She developed AMD in right eye which was fixed by single injection of AVASTIN. Six years ago she was diagnosed to have glaucoma. Her IOP could not be controlled well due to her being allergic to many eyedrops. She underwent Trabuctome surgery in one eye 9 months ago which made it worse.
In the past 6 months she kept loosing her vision and field sharply. Now she is legally blind with visual acuity 20/200 , 20/150. She has a Ahmed valve implanted in one eye 4 months ago which is able to control pressure. She is due for similar implant in the other eye in 2 weeks.
I wish her damaged optic nerves could be regenerated. We are devastated.

Posted by: Durlabh Trivedi at February 4th, 2015 9:25 PM

Please send any information on optic nerve regeneration. I have been blind for the past 19 years due to a gunshot wound. I would like to be involved with any research. Thanks

Posted by: Douglas Wilkiewicz at February 7th, 2015 9:59 PM

I hv damage in optic nerve cell give me idea to recover it.

Posted by: unknown at February 13th, 2015 11:02 AM

I have a brother who lost is 2 eyes last January 29, 2015, with gunshots on the head. he Lost his vision and the doctor who operated told me that his optic nerve was affected and cant see. If there are some posibilities that he can see again I am willing to donate my left eye just for him to see. I love my brother so much so please include us for stem cell studies. Thank you

Posted by: Arnel Laboc at February 18th, 2015 12:35 AM

The first of January of 2014 I was hit with sever I pain and found out that I have Optic Neuritis. I did the 3 days IV and 11 days oral steroids and still did not gain the sight back. They are keeping me under close observation. I have all the signs of MS but my spinal fluid is at this point is still clear. The MRI they did shows 8-12 lesions about 5-8 mm in size. I have had 2 MRIs over the past year since and the lesions have not changed.

Posted by: Ray at February 24th, 2015 3:45 PM

My 16 year old son suffers from optic neuritis due to Pseudotumor Cerebri diagnosed when he was 13 years old. He has had major improvement in his eyesight as he has gotten older but I would like to know more about regeneration of his optic nerves. Please contact me with updates. I am his mom and am also a trauma nurse! Happy researching!!!

Posted by: Lillian Hawthorne at March 2nd, 2015 8:47 AM

My husband had NAION in his right eye. After 3 months his left eye also got infected. He has about 16 percent vision left in both the eyes. PLEASE HELP.

Posted by: Neeta at March 11th, 2015 4:08 AM

Hi,

Im a 25 y/o female with NO sight in my left eye from birth. Was told when I was 3 that my optic nerve wasn't attached and that I was completely blind. My grandad before he passed away looked day in and day out for treatments to see if I could get sight in my left eye. But 3 years ago, I was left to look by myself as he sadly passed away.

I am interested in information in regards to having optic nerve reattachment etc and I would like some information/updates when it is relevant.

Good luck with the research and keep us updated!!

Posted by: Lyndsay at March 17th, 2015 11:07 AM

Hi! I am suffering for blindness 1 year ago. I involved in a motor cycle accident last March 09,2014. My left eye was blind due to the optic nerve damage, the doctors said that there's no way to heal my eye and get back my vision on my left eye. Any suggestions for me to do any possible way. I want my left eye to be healed.
thank you and Godblessed Everyone!

Posted by: Bernard at March 18th, 2015 3:32 AM

Hi....
My brother in low had scooter accident and demmmaed optic nerves and loose eye vison could u help us pl. Rply. As soon possible

Posted by: asha parekh at April 11th, 2015 10:56 PM

Hi - my dad is losing his eye sight due to glaucoma. He is a dairy farmer and has always worked the land...losing his sight would mean losing his livelihood. He is a good strong man, and it saddens me we are no closer to finding a cure or a way to preserve eyesight. I'm interested to see if there will be anything to help in my lifetime.

Posted by: Molly Smits at April 15th, 2015 10:38 AM

Hi,

i am from mumbai. My wife was suffering from tuberculosis and treatment is taken for around 90 days but in between she showed symptom like negative vision. Dr immediately advised to stop tablets and further treatment in *jaslok hospital it confirmed that she has lost 70% of her vision and optic nerves were damaged. The next course of action to be done by me. May request you to go thru the same and help me to understand the same is recoverable and what is the next course of action to be done by me. While suffering from optic nerve: 1) what is the possibility of recovery of eye vision? 2) is their stability in eye vision

Pls.Rply. As soon possible

Posted by: Sunil Gosavi at April 27th, 2015 1:57 AM

Hi, My son is 4 years old. Been struggling with his left eye since he was 8 months. Dr confirmed after a MRI that his left eye optic nerve is 1.6mm and his right eye 4mm. He also have optic neuritis. He is loosing vision rapidly. If there is any way to reverse this or stem cell treatment or regeneration of nerve please inform me.

Posted by: Juan at April 29th, 2015 12:52 AM

my optic nerve was cutduring an opperation to remove a benign tumour back in 1971 can it be rejoined ?

Posted by: m holland at May 6th, 2015 1:15 PM

My cousin's left eye was born amblyopia and can hardly see anything. Recently, during an accident, the optic nerve of his right eye was damaged, leaving both eyes very limited vision. We are interested in any infomation that can help to restore his optic nerve and vision. Thanks!

Posted by: Peng at May 10th, 2015 4:17 PM

My Dad is quickly losing his vision, possibly due to a stroke and TIA's that he's had. Please contact us if you need someone for test panels. Any info on repairing and healing the optic nerve is appreciated.
Thanks!

Posted by: Heather at May 11th, 2015 1:19 PM

My dad lost his vision in an operation which was carried out when he was 6 months old..! His optic nerves are damaged and he s totally blind..! Any proceedings in this research is appreciable.. I m posting this comment in tears.. I want my dad to see this beautiful world.. I want him to see me, my brother and mother.. :( please update me with d progress of d research... Thank you.

Posted by: Arunima at May 20th, 2015 11:59 AM

Hi i have NAION in both eyes. I can only see 10 to 15percent. Is there any Way fir improvement by any means. Thanks. Regards Jeet

Posted by: Jeet Singh at June 1st, 2015 11:36 AM

I lost left eye vision in November 2013. Subsequently staph infection and cancer have been issues under care. Opthamologists surmise optic nerve to right eye is dead due to a minor stroke or related to MS I had in the 80s and which may have exacerbated. Would like to know of means that lead to regeneration of a the optic nerve, or stem cell research that supports the effort successfully.

Posted by: Mohammad Iqbal Qamar at June 11th, 2015 9:29 PM

Hi in June 2012 I suffered with abcesses on the brain which has left me with a few different problems I have now been registered blind in my left eye and low feild of vision in my right eye i have been told this is due to optic nerve damage is there any since my illness I am unable to drive this is miss due to me and my small family have no independence I really want to start driving again is there any treatment that can be done to repair the optic nerve

Posted by: John at June 16th, 2015 4:49 AM

My brother have lost totally vision his both eyes during in car accident.his optic nurve is damaged nd his age is only 15 years old pls help me.,i do enything for him pls sir reply..nd now this matter is only one month old.thank u sir

Posted by: nikunj vaidhya at July 2nd, 2015 10:53 AM

My mother has lost her vision through glaucoma. Please could we have information on stem cell trials that will be done in Africa, we are in Zimbabwe.

Posted by: Judith Maria Ncube at July 16th, 2015 4:10 AM

I lost my Vision in my left eye, in April 2008 when i had a motorbike accident..looking every where for solution.

Regards,

Ahmed Benson.

Posted by: Ahmed Benson at July 18th, 2015 1:23 PM

09August2013 i had met with road accident on motorbike. I had injury on my left eye and after having MRI report i came to know that i am suffering from multiple small hemorrhages around the optic nerves in medical language (Post traumatic optic nerve atrophy).
2) Next to that i had undergone with endoscopy surgery to decompress the optic nerve.
3) But still i am not recovered yet, i have only vision in one eye i.e right eye my left eye not responding to any kind of light.
For your information: I am taking neurobin forte.
Plz. suggest how i can recover from my ailment or what can i do for betterment.

Posted by: Ishwar Dev at August 26th, 2015 5:23 AM

I would like to know if there has been any research going on in the case of NAION as i have only 5%vision left in both my eyes.

Posted by: Jeet at September 2nd, 2015 5:11 AM

My son lost his sight 2 years ago after a life threatening situation. Doctors have said blood pressure went to parts of his body to keep him alive and no blood went to his optic nerves so they both died. He would be glad to be a part of any research that would be beneficial in the regeneration of the optic nerves. If anyone has information in this regard, please sent me an email. Thank you.

Posted by: Barbara at September 10th, 2015 2:53 PM

My mom had 2 optic neuropathies, one in each eye, 30 days apart. She has been legally blind for 3 years now but in the last 6 months what little vision she has left is rapidly fading. It breaks my heart to see her so sad and desperate for any light. Her fear of permanent darkness is more than I can bear. I am very interested in any type of research or test studies she may be able to do. I have a son with cerebral palsy so I a very interested in testing stem cell transplants for both of them. Any help or recommendations would be greatly appreciated.

Posted by: Kim at September 20th, 2015 8:54 PM

I am a 47 woman with acute neuro optic neuritis. I have vision loss in left eye. Drs believe from an unknown auto-immune disease. I believe My immune was compromised through a bout of meningitis encephalitis I had 1997. Since 1997 nasal vision loss with minor flair ups over the last 17 yrs. I live in Boston and would love to know about any research or stem cell I could participate in. Please contact me.

Posted by: Toni at September 28th, 2015 7:54 PM

My Mother,46 year, having diabetes for three years, feels unable to read news paper lowlines about 6 months ago after removal of uterus due to fibroid,then she used spects of my father. About 2.5 months ago she feel slight 'dhundhlapan'(may be burl)in left eye only one time, apprx one month ago i have lost my left eye vision pain less within 10-15 days after it from 27/09/2015,, i have been given 5 steroids inj after then on oral steroids 60 mg withtaper by 20-20 mg for three days. after three days of steroid inj loss of vision in right eye with eyeache started and stopped at 3/60 within 4-5 days, when detereoration started in rt eye i have admitted in neurology AIIMS delhi where csf WAS NORMAL-pressure not more than 20, no cancer, NMO negative, mri orbit and brain -normal, with vision is 6/60 in right and 3/60 in left, they discharged us on continuation of 60 mg oral wysolone once a day with no cause found after taken the opinion of neuro opthalmolist who commented as 'No disc edema' on paper whille said to us as swelling in optic nurve. On repetion his comment was same on paper and said to us that swelling is as it is.
M'am after discharge, my mother feel 'dhundhlapan' (may be burl) in both eye which disappears in night. She had no vomiting,BP,headeche.
After 1 week, i ve gone to Neuro and opthal neuro in followup where vision was 6/36 in rt eye and 4/60 in left eye. but neurologist said us to followup in neuro opthal only with no comment on treatment that is being given by him.
neuro opthalmologist commented as swelling is as it is.
After it, we go for another neuro opthalmologist, She evaluated as complete disc pallor in left disc and coming in rt eye and said that it may optic neuritis. vision was 6/12 in right and 6/60 in left here. also she tapered the wysolone by 10-10 mg in three days.

presently my mother had no eyeache in left eye for last week and in right eye for two days. but saying improvement in vision in both eyes with burl.
when Dr neuro opthal evaluating, in last line, all the latters were readable exept first letter.and commented as 6/12 in rt and 6/60 in left.
also VER on 17/10/2015 is showing little abnormality with little high voltage in both eye.
what to do, is this pallor problem removable , is nurve recoverable . if not the will vision be stable.
is pallor controllable or may come/increse in rt eye.

Posted by: MukeshyKumar at October 30th, 2015 12:49 AM

My mother is a diabetic since 10 years. She has undergone a surgery as she had suffered from retinal detachment one year ago. Dr told that she will get her vision back and advised to keep patience. Now dr. Is of opinion that her nerves are dead. If it gets alive she can restore her vision back. I am ready to do anything for restoring her vision. I am interested in stem cell reaserch. Pl do contact me urgently.

Posted by: Dhvani pandya at November 3rd, 2015 12:47 AM

This article is dated back in 2012. Just wondering if there are any updates from this study. Any new information or results? Always searching for my daughter whose brain tumor damaged her optic nerves almost a year ago leaving her blind.

Posted by: Heather Cole at November 10th, 2015 9:21 PM

My boyfriend lost his sight about 4 years ago from a tumor he describes in layman terms as a "liquid tumor". After surgical removal of the tumor he experienced violent seizures, which have now stopped. He did regain some of his sight back. Not long after surgery he fell in his bathroom and lost all of his vision and has now been blind for four years. All who love him hate to see him suffer like this. Its mentally disturbing for him and all who love him. He has stated that he would participate in tests studies researches and procedures that would let him see again. His main desire is to see the faces of his children in any light stream or trickle of vision. Please contact me if our story makes him a candidate for any type of help. In addition this seems to be a possibly heridatary in his family. His mom now has a small brain tumor and he has a nephew that has had eye surgery because at first he could only see out of certain areas of his eyes and had to tilt his head to focus. He is ok after surgery. My boyfriend is no where near ok, please help

Posted by: lashona lewis at November 16th, 2015 3:31 PM

My 1 year old son is blind and he was not born blind we were involved in a terrible car accident when he was 3 months now I can see that he doesn't see well, what hurts me the most is that I don't have money to go see doctor about i really don't know what to do.

Posted by: Julia Mafanti at November 26th, 2015 3:56 AM

I don't think I have much of a right to post here, as many cases I have read are worse than mine and the people have suffered longer. Six weeks ago, I was a passenger who wasn't wearing a seatbelt in a vehicle being driven by someone I'd only met once before who was intoxicated and ran a red light. I don't remember leaving where we came from so I don't know what my head hit, as I broke my skull in two places and needed emergency surgery. Two small pieces of bone were lying against my left optic nerve. They didn't tear it but rubbed against it enough to lose 90-95% of my sight. I can't see light, even the sun, or tell if it's my mom or my son in front of me. I can see faint shapes of things and my sight is as if someone took a photograph and rubbed charcoal over it. Having only happened a short time ago, I'm still learning to be a one-eyed person...which is a blessing compared to some of the stories here and what COULD have happened to me in my accident. I hope there will quickly be progress made in the battle to restore peoples' eyesight. Good luck and best wishes to all who are praying for the same miracles.

Posted by: Andrew Durand at December 2nd, 2015 12:49 AM

My son's right eye vision was affected and when he did an MRI scan, we were shocked to be informed that a 3.7cm tumor compressed his optic nerve and damaged most of his right eye vision. He was 14 last year when he did his operation to remove the tumor. Later the doctor told us it was craniopharyngioma. But they can't revive his eye sight so he is left with one eye. Doctor said his right eye optic nerve is pale and pinkish which we pray and hope it may still be possible to revive the optic nerves.

Posted by: Cheryl Lim at December 6th, 2015 4:37 PM

Please contact me as I see no follow up to your original post and would like to learn more. Thank you

Posted by: Katie Marsh at February 4th, 2016 4:16 PM

My daughter is blind as a result of optic nerve atrophy, secondary to brain tumor. She was just 12 years old and is now just shy of turning 19. We are interested in trials.

Posted by: LAURIE LEVERETTE at February 5th, 2016 11:22 AM

my mother is blind due to effect of tumor on optic nerve.. tumor are successfully removed but she got blind due to effect of pressure exerted by tumor.... please give me suggestion to recover the situation.... please....

Posted by: abhinav at February 9th, 2016 8:31 AM

I lost my right eye sight more than 30 years ago due to optic nerve damage.
I would like to participate in any clinical research, if there is any... Or any information which could help to gain my sight... Thanks.

Posted by: Efraim at March 10th, 2016 10:46 PM

my 8 years old son is blind due to his both optic nerves are not grown fully to the brain.please give me suggestion to recover the situation.... please....

Posted by: srverine at March 26th, 2016 5:55 AM

Hi researchers, l am 33years. In 09/08/2008, I when to the farm an insect flight in to my left eye. Out of a sudden, my eye bulb developed some tension forces and came out of it cavity, my left vision keeps dropping drastically in a short time. I was immediately rushed to the hospital, at this moment, my vision hard become very low since I could only see a small rays from highlight when covered my right eye. The doctor recommend immediate surgery, during the operation, I feel a cut inside my eye, my uptic nerve was disconnected. My vision when down to zero ( I can't see anything even light with my left eye). After the surgery the doctor told me that I can never see again. Can someone help me or is there any suggestions that can lead to the recovery of my sight? Thanks

Posted by: Suimo at March 27th, 2016 2:29 AM

Hi researchers, i have a brother that lost his vision on his right eye due to optic nerve damage.
Please let me know if there is any news on the optic nerve regeneration or where can we get help.
Thanks.

Posted by: jose murillo at April 1st, 2016 6:20 PM

I have optic nerve damage (don't know why or how yet). I've seen numerous doctors at Johns Hopkins Univ Wilmer Eye Clinic and Univ of MD for the past 5 years. I am losing my vision and I'd like to find out how to stop this so I don't go blind. Please help.

Posted by: Christine at April 2nd, 2016 12:30 PM

Friends: I have a dear friend who suffered 80% blindness in both eyes following an ocular stroke 3 years ago. He reports that suddenly, he is now able to see 60% of his far right periphery field when he adjusts his eyes to the very far right.

Have any of you ever heard of this phenom?

Thank you.

Posted by: kemp at April 2nd, 2016 12:52 PM

Have normal tension glaucoma which is steadily progressing. Does anyone know of a doctor that is using nerve growth eye drops or any other treatments like stem cells? Any clinical trials I could apply for. Tx

Posted by: Anne at May 22nd, 2016 1:19 PM

Hello,

We have just been told the heartbreaking news that our daughter has glioma cancer that is treatable but has damaged her optic nerves and treatment could worsen her eyesight further. Obviously treatment comes
First, before thinking about improving her eyesight but it is helping me to think there is hope to improve my 2 1/2 year old daughter's eyesight. Is this something you could do or may be able to do in the future? Any words of Hope or areas you could lead me to would be most comforting. Many thanks, Rochelle

Posted by: Rochelle griffin at May 27th, 2016 4:51 AM

Hello,
My 2 1/2 year old daughter has a benign optical nerve tumour that has affected both eyes as her optical nerves are damaged. We would be most interested to hear about trails, tests & research that is going on to give us hope that something can be done to improve or even better cure my daughters bad eye sight.

Thanks,
rochelle
UK, London

Posted by: Rochelle griffin at May 30th, 2016 3:10 AM

Hi,

I want to know about the progress on optic nerve regeneration research. As my daughter has lost her vision 5 yrs.(now she is 11 years) back due to Meningitis, her both optic nerve got damaged.
what are the chances that she will see this world again, please help us, also include and inform us for any clinical trials.

Posted by: Vineeta at June 16th, 2016 3:05 AM

Hi my sister lost her eye sight coz of Tumor need a help x thanks

Posted by: Yadwinder uppal at June 21st, 2016 3:18 PM

My dad who is 93 and lives on his own. His right eye optic nerve damaged due to a stork in 1985 . This eye is totally gone at this time. His left eye is able to see a tiny bit of light only.This is first cause by glaucoma end stage form . We have had the cornea worked on and had stints and meds on meds.My hope is the never can get some regeneration with stem cell therapy of some kind . My dad is old but he shouldn't have to live his remaining year blind and unhappy . His age should not be a factor in a study but a help to see if he can heal anyone should be able to. If a when a study is started I hope to add him to a list of people ready to get started.
I have a 5 year old grandson who I have just found out has a birth defect of his optic never also and can see light and dark only so this would be another good candidate at the other end of spectrum. Thank you

Posted by: Pam Martin at June 21st, 2016 7:00 PM

Hi,

Please tell the research progress on optic nerve regeneration, we are desperately looking for the positive outcome of this research so that my daughter can get back her vision which she lost due to meningitis in 2011 when she was 11 years old.
Please please include us also in tests or your research procedures.

Thanks

Posted by: vineeta at June 22nd, 2016 2:07 AM

Hello,
My 28 year old daughter has a benign optical nerve tumour that has affected both eyes as her optical nerves are damaged. We would be most interested to hear about trails, tests & research that is going on to give us hope that something can be done to improve or even better cure my daughters bad eye sight. Sie war im 7 Monat Schwanger und hat erst ihr Kind zur Welt gebracht per
Kaiserschnitt und am nächsten Tag war die Hirn OP.

Posted by: Eugen Wissmann at June 27th, 2016 5:19 AM

Hi my dad is blind in both eyes From optic nerve damage from diabetes . He would like to volunteer in any test panels. Would also like any information on any stem cell research or clinical treatment.

Posted by: Flavio De Miranda at July 5th, 2016 12:53 PM

I'm 30 years old and suffered optic nerve damage in a car accident. Vision is down to about 30% can only see out of half of one eye. Would definitely volunteer for any research.

Posted by: Daniel colon at August 17th, 2016 3:01 AM

Hi All, My father met an accident, after that he lost vision in left eye and partial vision in right eye, it was very hurting for us...Doctors whom we checked told that there is no treatment. can anyone please if there is any chance to recover it .

Posted by: chandralekha at August 24th, 2016 12:11 PM

Hi. I had a severe reaction of tablets which has sulphate contant alot which caused reaction due to which i have nerve damage in my eyes and have only 30-40% of sight. I keep using lens now but still i suffer. Is there a possibility to make my eye nerve normal as it was? If this really works for please do let me know. Thanks and Regards. ELIZABETH

Posted by: Elizabeth at September 1st, 2016 7:19 PM

My husband met with an accident in Mar 2016...CT scan was good and after 3 days, he cannot able to see from his rt eye....we went to a opthalmalogist and was tested done and doctor said that his eye ball was intact in vision..but rt eye optic nerve was blocked and said that it is a traumatic optic nerve damage...for a month, he got medication and only shadow type vision is seen...Is there any treatment for his good vision????Pls help me out...

Posted by: srilekha at September 14th, 2016 6:28 AM

My uncle is suffering from optic atrophy in middle..plzz suggest me some best hospital where his treatment can be done..I wil b vry thankful 2 u..

Posted by: Avinash gupta at September 16th, 2016 11:06 AM

Hello guys,

I recently went to the Dr. I was told that I have 90% optic nerve damage. I'm 30. And I've had glaucoma since the age of (i don't know) 12, perhaps. I don't know how long 10% of optic nerves will last me. But I am totally scared. Having read your stories, I've decided to pray not only for myself but for everyone here. All of your stories have touched me and I am 100% supportive of OUR journeys. We are embarking on an unknown. Guys, I'm frightened beyond words. But its comments and questions and stories like yours that makes me have the courage to face this unknown. Lord willing, and if He allows me to maintain vision with this bit that I have left, I promise you and Him that I will work overtime in donating and bringing people in on this cause. I am praying for you all. God bless, and just keep telling everyone you know about this. Thanks

Cedric Taylor
Urban Entity TV

Posted by: Cedric Taylor at September 16th, 2016 4:37 PM

Im 42 years old i had a stroke of the optic nerve 14 years ago im blind in my left eye .i went for my yearly check up today he said that it wont grow back ..i cried ...im very fit i run ..i dont smoke .i eat healthy. I still have faith jesus is the healer so i still believe ....being blind is a big deal but it dont define you ..its only a handicapp if you allow it to be ...its a hard thing to deal with but ...you do...i hope reserch..comes up with a magic potion.......ill keep my faith...😄🌇

Posted by: susan barber at September 28th, 2016 9:06 PM

Actually I met an accident on Jan31st night at 9.30 p.m my right eye optic nerve injured severely so that I lost my right eye vision really I feel so bad can you help to findout treatment for the optic nerve severe injury to the right side

Posted by: Karthik at November 3rd, 2016 1:41 PM

my daughter is 10 yrs old having only 10% vision by birth she has scars on retina and optic nerver damage. can she be treated by stem cell? if anyone know plz tell me

Posted by: sultana at November 5th, 2016 11:11 AM

My 18 year old grandson has damage (from birth) to both optic nerves. It has been described to me as both optic nerves have potholes. He has some vision but I believe he would benefit from stem cell therapy I want to help him excell at college and life.

Posted by: Laura Patrick at November 6th, 2016 12:44 PM

Hi sir, my name is Karthik I met an major accident on jan31st night and I wereadmitted in comma for 1 month because of injured in optic nerve I lost my right eye vision I feel very bad just am 24years old can u help me to find out the best treatment optic nerve regenaration

Posted by: Karthik at November 8th, 2016 10:21 AM

My niece lost his right eye vision in an accident while bursting crackers.The optic nerve is damage but not detached .He is 15 years,Is there any chance to get the eye sight back as he is a kids over the period of time due to regeneration of some optic nerve cells.Please help if you have any treatment to get his eyesight back.

Posted by: Shweta Surana at November 26th, 2016 12:55 PM

Hi sir, i am digambar from pune,my brother has lost left eye vision in bike accident dr. Said that due to optic nerve damage he can't be able to see is therw any treatment to regenerate optic nerve

Posted by: Digambar at December 1st, 2016 12:51 PM

my husband is loosing vision through glaucoma. Please could we have information on stem cell trials

Posted by: ADETOLA at January 4th, 2017 1:00 AM

Hi ,

My dad lost his vision completely due to glaucoma please let me know if we can do anything to get slightly vision . We are open for any test on his eyes .

Rishi

Posted by: Rishi Sharma at February 5th, 2017 8:38 PM

I had glaucoma surgery in both eyes in May, 2016. However, I had an eye stroke in the right eye in Sept,2016. That blind me in that eye. Please, I would desire to become part of a study to correct this and see again. I remember the surgeon saying at one of the OST visits tothat there's no blood flow on that eye. Also, please contact me if I can get some help to see - I am almost 67 yrs old.
Also, is there such thing as an eye implant. Thank you!

Posted by: Brenda Willis at February 20th, 2017 12:13 PM

Reverse or repair or any home remedies for optic nerve damage is there anything you can do to help out

Posted by: Anna Holland at February 21st, 2017 7:32 AM

My father met with road accident and he lost his vision due to injury in retina and optic nerve... So please suggest is there any treatment available to get back the vision...

Posted by: Hitesh Kakani at February 27th, 2017 6:04 AM

My husband has lost all but 20% in one eye due to optic glioma as a child. The optic nerves are dying. We would be interested in research and possibly trials/testing.

Posted by: Gabrielle Elkin at March 21st, 2017 12:21 AM

My brother lost his both eye vision due to pititutary gland which is already removed kindly advise accordingly to restore his eye vision
Thanks

Posted by: MUHAMMAD AKRAM at March 30th, 2017 3:34 PM

My sister will need cateract surgery in the near future but is blind in one eye to meningitis damage to the optic nerve. She is fearful she may finish up being totally blind.

Posted by: john robson at May 12th, 2017 10:23 PM

My husband had met with an accident on feb 2017 and lost if both vision.plz help us

Posted by: Yasodara at May 26th, 2017 2:23 AM

My husband of 65 has had some kind of trauma to his optic nerve when he was a young lad and we thought there was no treatment available, for his vision in the one eye he would be interested in any new treatment as he can only see through what he describes as a net curtain. Please keep us informed of any new treatments available as it would make a tremendous difference for him

Posted by: Inglis at June 1st, 2017 9:33 AM

My fiance suffered an optic nerve stroke in 2002 at the age of 21. In was/ is in terrific health. He is fully blind in his right eye since stroke. He is currently being treated for high pressure in eye reading at 38..he is on drops for glaucoma in hopes to decrease pressure ..also steroid drops and drops to help pain spasms. Due to corneal edema on top of issues they discussed today removing his eye Because of hemmorhaging that is not visible because of high pressure and blood settling. It's frustrating that eye removal is considered...we are desperate for another option as vision is not only concern. Always looking for information on further research of other options.

Posted by: Des at June 23rd, 2017 5:33 PM

My husband diagnosed with optic nerve atrophy due to hydrocephallus and brain tumor. Now the tumor had been removed but his vision is not cure. Please suggest some treatment

Posted by: ayesha abbasi at July 15th, 2017 9:06 AM

My son was born with healthy eyes. At the age of 4, he complained about his left eye.
He said he can only see objects from the side. So we went and made an appointment with an eye specialist for him. At that appointment the Dr said he needs to go under anaesthetic to do further investigation.
The results the Dr gave us are that he can't seem to find anything wrong. He said my son has got a lazy eye. So we tried all the methods the Dr said to improve the laziness. That December my son came to me and told me he can't see anything out of his left eye. It was close to Christmas and so we had to wait till January for all the Dr's to open. After the second appointment in his surgery he said my son has to go under another anaesthetic. A few days later we were in the hospital again for further investigation.
Results time came and the Dr said he can't be sure but he thinks it might be his optic nerve but can't seem to find something wrong with the eye. According to him my son is supposed to have full vision.
After that appointment we never went back because the Dr said there is nothing he can do for my son at that time. My son just turned 7years of age and is complaining that his right eye that has great vision is starting to hurt and complains about soreness in and around the eye while in school and doing homework.
We made an appointment with a new eye specialist for the 14th of August (earliest appointment they've got), but I am so scared to go through this again. My son is scared of hospitals and even if we come near one he starts to vomit.
Please I need help or options we could consider.
Many Thanks
Tammy

Posted by: TAMMY at August 1st, 2017 4:15 AM

My mother (60 years old ) became totally blind on post op day 3 craniotomy for a benign brain tumor. Pupils are non reactive to light 2 months since surgery. Doctors say it is likely related to swelling but after 2 months with no sight and non reactive pupils, hope seems less and less. Please consider her for this study!

Posted by: Justina Anstey at August 11th, 2017 5:12 PM

I have right eye blindness since 2013, due to death of optic nerve either due to a minor stroke or multiple sclerosis I had in th 80s which maybe regressing.
Would like to know when there is an approved cure to resuscitate the optic nerve.
Thank you

Posted by: Iqbal Qamar at August 12th, 2017 4:30 PM

My Husband was shot in the head during home invasion in May 2003. The bullet entered the head at the frontal lobe and is lodged in the rear of the brain. Both optical nerves were damaged and my husband is blind in both eyes. He is a quadriplegic as well with sparing used it right hand and brain damage. The restoration of sight is all I ask. This would be life changing for us all after 15 years. Just his sight.

Posted by: Jackie van Zyl at August 15th, 2017 12:30 AM

Hi,I am a 33year old female I suffered optic neuritis on both eyes, had received solumedrol,plasma exchange and polygam.there is optic atrophy on the left eye and mild optic atrophy on the right eye.I am now left with foggy vision on the right eye.please help with vision regeneration,thank you.

Posted by: lehlogonolo at September 2nd, 2017 9:53 AM

Hi I'm 21 and had a brain Tumor I have lost vision in my left eye and have about 5% of vision in my right eye can't see colour every thing is black and grey I would live to take pArt would love to be able to see or even a slight improvement will be a miracle thanks you

Posted by: Nad at October 3rd, 2017 3:49 PM

Hi Professionals, my father is 65 years old and he had an severe injuries on his left eye (Globe ruptured) and his right eye was blind since 20 years old. Now he can only see weak light and shadows in short distance. Doctor can't examined that his optic nerve because too much blood in the eye. I would like to ask if the nerve is dead, how long will it stop working? In this situation, is my father's eye curable? Thank you!

Posted by: Daphene at October 4th, 2017 1:00 AM

I have progressive optic nerve damage brought on by drug toxicity after the introduction of a blood pressure medication. At this time, 2 years in, I have lost a total of 30% percent of my peripheral field. I am anxious to at least stop the damage.

Posted by: Gina at October 7th, 2017 5:42 PM

My 73 year old father has nerve damage that has caused him to go blind due to medication he was given and it attacked his nerves PLEASE let me know if there is any HELP for this PLEASE

Posted by: Melinda Kidd at October 9th, 2017 8:53 PM

My daughter is totally blind when she was nine months old she was suffered by craniopharyngioma we operated her optic nerve is damaged
Can it cure

Posted by: Dev suryawanshi at October 28th, 2017 10:01 PM

My Aunt was about 9 years old when she had a brain tumour... It was removed, however, her optic nerve was damaged in the process... She is able to detect some light and shadow movements. I would really love to help her. Please help!

Posted by: Neshlin at October 31st, 2017 4:01 AM

My husband's (43yrs) optic nerve did not develope 100% at birth and His eyes have stigmatism. An eye doctor, once told him his eyes were perfectly healthy, but the reason why he needs glasses is because his optic nerve did not develop 100%. Would this new research help my husband? We are interested in this treatment and would really appreciate your help. Thank you!

Posted by: Martha Gonzalez at January 7th, 2018 12:02 AM

Hello,
I lost my central vision about 3 years ago and there isn't an exact cause or diagnoses. I am looking for trial or treatments that may help. I am told I have lesions on my optic nerves. I am willing to move so I can be in an area to get help. If anyone knows of a place in the United States that will treat or where I can participate in trials please let me know!

Posted by: Krissa at February 2nd, 2018 10:35 AM

my son prannay made accident in goregaon MUMBAI as he was crossing the railway track & local train hits him and front head heat the ground on railway track and broken. brain operation was made on 22nd sep 2017 but now he is physically stable but unable to see as his both eyes is damage due to damage in optical nurve. please help us as he only 20 years old need your help. we are ready for any treatment available in the world, please lets us know.

Regards
Prashant Chatterjee

Posted by: prannay chatterjee at March 14th, 2018 9:01 AM

Hi there can you contact me i got injured my octic nerve im looking anyone can help me to cure since 2 months when i got accident

Posted by: Roland uytuico at May 22nd, 2018 6:34 AM

Has anyone gotten help from this post?

Posted by: Sue at June 6th, 2018 9:22 AM

I met with an accident in 2005. My left eye was optic netve partly damaged.
I would like to share and participate in clinical trials towards the regeneration of optic nerve

Posted by: Venkat rao yalla at June 16th, 2018 8:12 AM

Hello I was in a car accident and I tramatized my optive nerve in my right eye no damage just stopped working I have not retained my vision

Posted by: Preston Wilkins at August 8th, 2018 6:59 PM

I found this website I am reading all of the messages everyone is involved on a different level my husband lost his eyesight after he passed away from a motorcycle accident not receiving the proper bloodflow I would love to be involved in a survey or a program please give me an update of where all these messages are landing and what is the most recent research it would be most appreciated

Posted by: Courtney at August 14th, 2018 7:06 PM

I would like to take part in any procedure that restores eye site to my left eye which was damaged in a motor car accident.it has 10% ability to see.

Posted by: James Ingram at August 28th, 2018 2:16 AM

Hello, could you contact me this is in regards to my daughter who has no vision.

Posted by: Christina Holland at September 22nd, 2018 8:27 AM

HI, 11 YEARS AGO MY SISTER WOKE UP WITH A VERY STIFF NECK , SHE COULDNT TURN OR DO ANYTHING.sHE WENT TO THE DOCTOR AND WAS GIVEN MEDICATION BUT THE DOCTOR COULDNT TELL WHAT WAS WRON. A DAY AFTER DOCTORS VISIT , HER FACE WENT NUMB HE COULDNT SEE, HEAR , TALK NOR WALK . SHORTER VESION SHE IS BLIND NOW DOCTORA SAY SHE HAS DAMAGED HER OPTIC NERVE . YOUR HELP WILL BE HIGHLY APPRECIATED.

REGARDS

Posted by: BONNIE at October 4th, 2018 4:52 AM

Hi
I am Mrs. Hemalatha from India, 69 yrs old. Suffered central retinal artery occlusion I. The month of March of this year and lost partial vision in my right eye. Would be very interested in knowing whether any trials have been successful in regenerating the optic nerve. Very willing to take part in any trial as this loss of vision has impacted my life terribly. I request you to please include me in any trial being conducted for this.

Posted by: Hemalatha at October 13th, 2018 6:41 AM

I had central retinal occlusion when I was 23 years old and lost central vision from my left eye. I'm a software engineer and it's getting difficult to work with just one eye as I'm getting older. I would love to hear more good news about recovering from optic nerve damage.

Posted by: Hemi Tailor at November 25th, 2018 7:47 AM

I heard there was a clinic in North Carolina treating soldiers who
Lost sight through a hypobaric chamber, we have one in our city so I am pursuing that avenue for my spouse who had strokes to ho his optic nerves!

Posted by: Patty Ralph at December 7th, 2018 6:15 AM

My mom has significant optic nerve loss due to glaucoma, and we will appreciate any method, therapy which could give hope to make the nerve better. Thanks

Posted by: Kashif at December 18th, 2018 3:13 PM

My son is 7 Years old.Left eye are no vision and optic nerve block.pls suggest best treatment and therpy

Posted by: Pavan kumar at January 31st, 2019 3:52 AM

My wife right eye have problem in optoc nerve. She does not see anything. Please help any doctor for this.

Posted by: Kapil at February 16th, 2019 2:14 AM

Hello I am Mr jahangir 21 year old. I have optic nerve damage in my right eye and I have no vision in my right eye. Reason of this tregdy is accident in car in nov 2018. So please give me better suggestions for treatment thnkyou

Posted by: Jahangir at March 19th, 2019 6:15 PM

My brother is unable to see from his left eye for 8 years. Actually, his eye was injured by bullet shot and because of that his cirnea got damaged and optic nerve was blocked and timy bullet is still in his eye which cannot be removed according to doctors . Doctors did his corneal transplant 3 years ago but there is no improvemnt in his eye externally . please prescribe me that what should i do ...THANK YOU

Posted by: Navjot at March 24th, 2019 7:31 AM

My mom just was told shes going completely blind and quick due to Optic Nerve Damage and there is nothing they can do for her, that there are no medicines, studies or test they can do to help her regain her vision. Please help if there's anything we can do.

Posted by: Nichole Bruno at April 12th, 2019 9:08 AM

My youngest sister got blind 8 years ago due to multiple brain tumors (tuberculoma). She was later treated with anti TBs . She is yet to regain her sight. Please please, if there is anything you can do for her,we shall appreciate.she is very young.

Posted by: Susan at June 5th, 2019 2:43 PM

Hello my world went dark 19 years ago after walking out the door was shot in the head resulting in a severed optic nerve looking to see if there's any studies or stem cell treatments that could help restore site like I said to other doctors when going through stuff over the years I'll be a guinea pig if I could do something being a test patient that can help somebody else out I am all for it hoping to see once again

Posted by: Chuck at June 12th, 2019 12:51 PM

I have Partial atrophy of the optic nerve
Happened last year in January from accident
And now I cannot see good my eyes so week even with glasses I can't see good
And now i see by half of my right eye and quarter of my lift eyes , did anything can heal this ?

Posted by: Abdeelrhman at July 6th, 2019 12:52 PM

Hello, i met with a car accident which caused traumatic optic neuropathy in my right eye. No vision or light perception after accident on 4th August 2019. I had an optic nerve decompression done; but still hoping on anything that can help me gain my vision back,any miracle. My optic nerve is intact but was impinged by bone fragments which were removed. Is there any new therapy or research to help my nerve fibres rejuvinate. I want to see the world like I used to.

Posted by: Ankur Saha at September 4th, 2019 2:16 AM

Hello, my son was involved in an accident October 2018, he lost his right eye and has lost his vision in his left eye. His optic nerve suffered extensive damage. Anything that will restore any useful vision would be a blessing.

Posted by: Samantha at September 6th, 2019 12:58 PM

My son 36 lost his sight overnight , went to bed and could see woke a few hours later and couldn't , we were told the optic nerves are dead, is there any hope for him to see again , even slightly , thank you

Posted by: Susan clark at September 19th, 2019 10:32 AM

My fiance Allison has been blind for 15 years due to VKH witch put pressure on the optic nerve. She has not seen what her kids look like anymore and still has no clue what our youngest boys look like as well as myself. Probably why I'm with her; her not shallow way. Allison has noticed a couple of spots of slight vision in a few spots in each eye. She continues to use her eyes as if they do work to delay atropine. Her and I were wondering if there was any kind of testing or trials in witch we can try?

Posted by: Chris at November 6th, 2019 4:17 PM

Hi,
My brother had blindness both eyes due to optic nerve atrophy.
is there any hope for his treatment kindly share the info God Bless u.
Thanks

Posted by: Afzal at December 9th, 2019 8:45 AM

Hii, im 21 years old . I lost my right eye totally vision in an accident. This happened in 2010 as when i was 13 years old. Im really stress about this and my parents did well treatment but they didnot find any treatment. But now I want help to cure this. Hope so someone help me.

Posted by: Maninderjit kaur heer at December 14th, 2019 10:57 PM

Hi,
My mom suddenly loss 1 eye vision. Doctors suspected it is because of ischemic optic Neuropathy. Doctors suggested there is no proven treatment for this disease.Interested to learn more about this.

Posted by: Megha Agrawal at December 31st, 2019 3:20 AM

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